I recently visited hospital, due to involuntary nervous movement, eye & neck movement with stiffness, I was told I hv this said dystonia, hv been following medications very well it seem the symptoms hv still increasingly continue, what can do about it, bcos it comes with some severe pain as well as twisting of leg & mouth reactions.
Before I knew what was wrong with me I was already making a recovery that defies what is known about dystonia. Do not lose hope… my case progressed to the point that it was scary hard to breathe but over a period of 6 months I did such intense rehab on my body and brain that people come up to me in the gym to compliment my strength and they have no idea I have a movement disorder. It used to be hard to hold a pen, now I can go for a 5 mile jog and theres nothing difficult about it. In fact I continue to stack heavier and heavier weights on the bar at the gym in an attempt to stir up more symptoms so I can get rid of them. Same with cardio Ive caught my heart over 200 while RUNNING on a stairmill as the dystonia quivers and runs away from ME! I think this disease is very treatable by people that know what they’re doing. Sadly western medicine has decided the c induction is mostly hopeless and definitely chronic. My experience has been just the opposite. Anything I want is possible and this is not what doctors told me. So if I can regain all this function and get my life back by myself why do doctors tell people to learn to hurt? It was a challenge to recover certainly but that didn’t make it impossible. Stay strong if you’re dealing with this diagnosis there are so many reasons to have hope!
I already treatment cmc hospital India. No improve.
I take botox but no work
আমি আপনার সাথে কন্টাক করতে চাই আমার এই রোগ আছে
Is dystonic cp is cured
I recently visited hospital, due to involuntary nervous movement, eye & neck movement with stiffness, I was told I hv this said dystonia, hv been following medications very well it seem the symptoms hv still increasingly continue, what can do about it, bcos it comes with some severe pain as well as twisting of leg & mouth reactions.
Before I knew what was wrong with me I was already making a recovery that defies what is known about dystonia. Do not lose hope… my case progressed to the point that it was scary hard to breathe but over a period of 6 months I did such intense rehab on my body and brain that people come up to me in the gym to compliment my strength and they have no idea I have a movement disorder. It used to be hard to hold a pen, now I can go for a 5 mile jog and theres nothing difficult about it. In fact I continue to stack heavier and heavier weights on the bar at the gym in an attempt to stir up more symptoms so I can get rid of them. Same with cardio Ive caught my heart over 200 while RUNNING on a stairmill as the dystonia quivers and runs away from ME! I think this disease is very treatable by people that know what they’re doing. Sadly western medicine has decided the c induction is mostly hopeless and definitely chronic. My experience has been just the opposite. Anything I want is possible and this is not what doctors told me. So if I can regain all this function and get my life back by myself why do doctors tell people to learn to hurt? It was a challenge to recover certainly but that didn’t make it impossible. Stay strong if you’re dealing with this diagnosis there are so many reasons to have hope!
Sir i have a dystonia in my foot how to treat please help