I would definitely 💯 start a petition for you if I could get people to sign it. This has to stop NOW! You’re being treated unfairly by the NDIS and it’s got to change ASAP! No one should have to suffer like that, I couldn’t live like that suffering with 5 seizures in a day, that’s enough to fry a person’s brain! Sending prayers and love to you from TN. In the USA 🇺🇸. Come on people please help me with starting a petition to help DYAN. I wrote to the government over there and I told them what I think of how they are treating you. Sending you some spoons 🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄.
I fell so bad for you. I hope that things are going to get bette4 for you. I’m here for you and I’m willing to help you in what ever way you need. I’m sad to see you this way
My heart is with you, I truly hope you are able to get the help you need. I too have suffered my whole life with medical conditions that are difficult and difficult to treat. They differ from yours but I can totally relate to your frustration. I am glad that you have a great partner to take care of you. I live alone and it is extremely difficult. Sending you healing love and prayers 🤍❤️🩹💖🫂🙏🏼
Am sorry your going through Wish i lived nearer.than i could jump up and down on the medics heads.xsending you all my love across the water tobyou and matt.xxxxxx😢
Hey, my friend and sister from Australia. I am here for you, my friend, you’re not alone and not forgotten and you have a story to tell. If I would know better, you have a testimony as to everything that you’ve been through and you can be an inspiration to other people as you are for me. Heck, I could get you the media attention you want, but it’ll be here in America, but I bet you those people are in cahoots with someone in your area 🙂 and I’ll sign any petition and even make one if I know what to put on it. I’m in your corner and I’m rooting for you. 50 shouldn’t be a reason they should treat you like shit, sorry for the bad word, but it’s just ridiculous. That should not be a reason that they mistreat you, no reason is good enough for that. I pray for you daily just so you know and Matt, of course as well. Keep your smiling pretty head up and don’t frown too much smiley. It takes more muscles to do that, lol you can do this girl! You got this!
I am learning so much from you. You should be untitled to an oxygen tank and suction with the amount of seizures you have. Also they should be doing more tests to find out why this is happening? I feel so much for you it’s wrong what they are not doing . Even here in the uk it can be a postcode lottery whether you get the treatment you need.❤❤❤❤❤❤
This video is such a brave and eye-opening glimpse into life with seizures. Your strength and vulnerability in sharing your journey are truly inspiring. Thank you for spreading awareness about #22q and showing the resilience it takes to face these challenges every day. Sending you love and support! 💜
my sweet mouse 😢❤
I would definitely 💯 start a petition for you if I could get people to sign it. This has to stop NOW! You’re being treated unfairly by the NDIS and it’s got to change ASAP! No one should have to suffer like that, I couldn’t live like that suffering with 5 seizures in a day, that’s enough to fry a person’s brain! Sending prayers and love to you from TN. In the USA 🇺🇸. Come on people please help me with starting a petition to help DYAN. I wrote to the government over there and I told them what I think of how they are treating you. Sending you some spoons 🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄🥄.
I fell so bad for you. I hope that things are going to get bette4 for you. I’m here for you and I’m willing to help you in what ever way you need. I’m sad to see you this way
My heart is with you, I truly hope you are able to get the help you need. I too have suffered my whole life with medical conditions that are difficult and difficult to treat. They differ from yours but I can totally relate to your frustration. I am glad that you have a great partner to take care of you. I live alone and it is extremely difficult. Sending you healing love and prayers 🤍❤️🩹💖🫂🙏🏼
Whoes your mp.that what i did to get ny hudbsnd thevright trestment
Lets all bombard the medics to get dy the treatment she needs.no matter where you live.
Where can i send a lettter ro.
Am sorry your going through
Wish i lived nearer.than i could jump up and down on the medics heads.xsending you all my love across the water tobyou and matt.xxxxxx😢
Hey, my friend and sister from Australia. I am here for you, my friend, you’re not alone and not forgotten and you have a story to tell. If I would know better, you have a testimony as to everything that you’ve been through and you can be an inspiration to other people as you are for me. Heck, I could get you the media attention you want, but it’ll be here in America, but I bet you those people are in cahoots with someone in your area 🙂 and I’ll sign any petition and even make one if I know what to put on it. I’m in your corner and I’m rooting for you. 50 shouldn’t be a reason they should treat you like shit, sorry for the bad word, but it’s just ridiculous. That should not be a reason that they mistreat you, no reason is good enough for that. I pray for you daily just so you know and Matt, of course as well. Keep your smiling pretty head up and don’t frown too much smiley. It takes more muscles to do that, lol you can do this girl! You got this!
Hi guys are the carers learning the stuff you do for dyan for when you have to go somewhere? ❤
I am learning so much from you. You should be untitled to an oxygen tank and suction with the amount of seizures you have. Also they should be doing more tests to find out why this is happening? I feel so much for you it’s wrong what they are not doing . Even here in the uk it can be a postcode lottery whether you get the treatment you need.❤❤❤❤❤❤
This video is such a brave and eye-opening glimpse into life with seizures. Your strength and vulnerability in sharing your journey are truly inspiring. Thank you for spreading awareness about #22q and showing the resilience it takes to face these challenges every day. Sending you love and support! 💜